Family-Provided Health Care for Children With Special Health Care Needs

Transition care for children with special health care needs.

BACKGROUND Approximately 750,000 children in the United States with special health care needs will transition from pediatric to adult care annually. Fewer than half receive adequate transition care. METHODS We had conversations with key informants representing clinicians who provide transition care, pediatric and adult providers of services for individuals with special health care needs, poli...

Coordination of care for children with special health care needs.

PURPOSE OF REVIEW Coordination of care is an essential function of pediatric primary care, needed most by children with special health care needs (CSHCN). Although complex, its necessity has become better recognized with the recent increase in attention in the United States to the comprehensive "medical home" model of care. RECENT FINDINGS Coordination is highly dependent on effective communi...

Children with special health care needs.

Evidence for family-centered care for children with special health care needs: a systematic review.

OBJECTIVE Family-centered care (FCC) has received widespread endorsement for use in care in the United States. In this study, we conducted a systematic review of evidence for FCC focusing specifically on family-provider partnership as the activity that constitutes FCC. METHODS We found and reviewed articles from the medical, nursing, psychology, and sociology literature spanning 1986 to 2010....

Managed care and children with special health care needs.

The implementation of managed care for children with special health care needs is often associated with apprehension regarding new barriers to health care services. At times, these barriers may overshadow opportunities for improvement. This statement discusses such opportunities, identifies challenges, and proposes active roles for pediatricians and families to improve managed care for children...